I've been asked to do a video answering questions about living with Harlequin Ichthyosis. I've also been asked to write an article on being pregnant with H.I seeing as how I'm literally the first person whose ever been pregnant that has this skin disorder. I'm honored to be an educator on this topic but in order to answer questions, ya'll have to ask me questions. I've already received more than I expected but I'm always welcoming more. I've said a billion times, I'd rather someone ask vs. assume.
So ask any question you'd like! Personal is fine as long as its respectfully asked and not vulgar. Aslo, Curt will be answering questions as well. Questions for him? Ask away!
To ask us questions click on our:
Formspring anonymously or add your name.
Stephs twitter, Curts twitter,
YouTube Channel, Facebook or as a comment on this blog!
I have a question. I've been following Blessed By Brenna's blog & from it learned tight skin is part of the skin condition you share. Does this pose a problem & if so how are you treating it as that precious baby grows & stretches your tummy into a beautiful baby bump?
ReplyDeleteI wonder if you will know if your son has HI before he is born? Or will you have to wait for him to born to see if he also will have HI?
ReplyDeleteI was wondering what your dating life was like with HI? How did the two of you meet and how was your relationship affected by HI?
ReplyDeleteI have a 4 month old boy with HI .. he is my 3rd baby with that disease ( the first 2 passed away) I was wondering are you ever in any pain? or discomfort?
ReplyDeleteHow do you deal with the heat? And what type of treatments do you do for your eyes? (and my fb question What do you feel was your biggest challenge growing up?) You are amazing Stephanie! Can't wait to meet you, Curt and your precious baby someday!!!!!
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