3.2.1 get ready

Lately I guess I've lost the reason and "umph" that I had to post videos and/or blog. I became so busy with my own life that I quit doing what I enjoy.. I've always wanted to make a difference even in the smallest of ways. When someone new learns about Harlequin Icthyosis because of me, I feel SO accomplished. I don't just mean the basics of H.I but the fact that people with it are just as likely to live a "normal" life as anyone else. Sure, it may not be as easy but who said life was easy? Anyway.... I've always enjoyed putting my life out there hoping someone new (or my dedicated subscribers) view it as a positive thing. Like "no matter what obstacles you're given, you can stay positive." by no means am I saying I don't have bad days or that I have the worst life ever. I have a great life and I definitely do have bad days!

I lost my "umph" until I was on facebook this morning and saw Harlequin Ichthyosis moms ranting about a picture of a H.I baby posted on facebook for "likes". We have enough critics in life without ignorant people exploiting us. I didn't see the picture myself nor the comments but I'm sure they're horrendous, just watch YouTube videos and look at some comments. It's all completely ridiculously ignorant, selfish and just cruel. That picture was someones baby, grandbaby, sister or brother put out on display without any purpose at all  other than to gain attention. The majority of it was negative especially since no one had any information to go on.

Luckily an  extraordinary momma of an extraordinary little girl has a popular blog that she updates regularly. As soon as some people saw that Facebook picture, they commented directing other people towards Blessed By Brenna. I'm SO glad she has that blog and educates so many people. People were saying how they're glad too since thats where they got their information from after they saw the picture.. She's not the only mom who has an educating blog on H.I, De has a great blog as well that talks about her two year old son Evan.

If these women didn't have a blog and weren't up for educating people on they're babies condition, a lot less people would know about it now. Which brings me back to my point, if I up and quit videoing and blogging what am I helping? Nothing AND I'm missing out on doing something I love.

So yall get ready for some blogging and videoing.. Ps. I got a new laptop & that doesn't hurt either. ;)

Sweet Ev-man :)