Since last weekend was memorial day weekend Curt, my family and I all went to the lake for the weekend.. Its always crazy going to the lake or going anywhere in public in the summer. Most girls tan all during summer, some over due it. I'm not one of them girls, since I definitely don't need a tan or even out in the sun too long.
Everyone out on the lake always assumes I've been stupidly severely sunburned. I get that on a daily bases but it obviously increases by a trillion in the summertime. Its safe to say I raise awareness by 25378646 in the summer. Haha!
Between a life threatening skin disorder, being married and being so young, we have our work cut out for us! Join us throughout our journey.
Tuesday, May 29, 2012
Summertime
Wednesday, May 23, 2012
Babies?
People are constantly asking us when we're gonna have kids since before we even got married. We're still very young but we're getting older and our friends, Co-workers and old classmates are popping out kids left and right, of course we feel pressured to have a baby! Don't get me wrong, we both want kids so bad its unreal but there are more steps we have to take before we even consider kids.
I've loved the idea of a baby since I was 15. No, I wasn't taking the necessary steps needed to have a baby nor did I physically want a child. However, I knew id be a great mom and I had so much love in my heart that I wanted to give to a precious baby. I also wanted the "needed to be needed" feelin. Luckily momma didn't raise no fool (haha) so I didn't do anything to put everything in action.
Curt is fantastic with kids! They love him and he loves them. No doubt in my mind that he'd be a terrific daddy...
We've talked about kids many many times. We also realize that since my skin doesn't stretch like the average persons, it'd be very painful, risky and maybe life threatening for me to carry a baby for 9 months. Plus my body does good just to keep itself healthy, muchless another human! To my knowledge there has never been a woman with harlequin ichthyosis have a baby... And as much as I love proving the doctors, science, statistics and sometimes even myself wrong, I'm not able to risk another humans health/life just because we want a baby.
It breaks my heart to know that I can't give my husband the one thing he wants more than anything in the world. It almost makes me feel like less if a woman.. I know Curt would never want me to put me or our unborn child in harms way. He's very understanding about everything of course, what else would you expect from the best husband ever?
We're very much considering adoption. We checked out the criteria and everything so maybe one day we'll have our own little angel... Gonna do a little praying and money-saving and see how everything goes! For now, our little angel has four legs and devours food when I drop it. :) Ole Max!
Sunday, May 20, 2012
Our move.
If you watch my YouTube videos you know that Curts family lives an hour away from mine... 2 Weeks ago we randomly up and moved to my hometown from his because its closer to his new job that he's starting tomorrow. He's recently got hired on in the Union (apprenticeship, electrician).. Well we lived with my grandparents while we were looking for an apartment, having a dog made it ten times harder! Last night at 11:00pm Curt decided it'd be better if we moved back to his town because..... Well, I think he was just homesick. So being the wonderful wife I am (haha), got out of bed, got Max loaded our junk up with the help up of Curt of course and headed an hour away back to his town... Don't get me wrong, I like both towns but id love if we could Getty our own place real soon so we would feel the need to "house-hop". Everyone had made us feel so welcome and at home but id love to have our own place instead of depending on our families. Thank God we're blessed with such amazing people in our life.
So now we're back to living with his parents. We're steadily looking for a house or apartment that allows pets but its harder than you might think. Keep in mind both towns are very small... We're not willing to give up Max right now, if ever. He's our baby! :) Wish us luck!
Thursday, May 17, 2012
Wednesday, May 16, 2012
Harlequin ichthyosis
As I stated in my about me, I have a skin disorder.. Its a genetic skin disorder that lacks the barrier to keep moisture in and germs out.. Therefore I apply aquaphor frequently throghout the day and I get sick much easier and it can be muuuuch more serious than your average persons sickness. It also makes my skin red... All over, 24/7. And thank goodness for wigs because due to my disorder I can't grow hair except a tad bit on the back of my head. I've worn wigs since 1st grade, I used to be really secretive about it but now im very open about it...